Listening to this audiobook the past few days has been so helpful as I continue to navigate the ways covid changed my body. It’s been two years since this all started. Sixteen months of keeping a diary of symptoms, trying to figure things out and dealing with new complications from trying various solutions. Migraines, heightened anxiety; hormonal changes, greater sensitivity to histamines…. it’s felt at times like I’m collecting “-ologists” as I look for answers.

There are many issues addressed in the book that I’ve wrestled with:
-the shame of having to cancel commitments or plans because of a flare up
-not wanting to commit to something because I’m not sure how I’ll feel that day
-having to ask others for help (a LOT)
-dealing with disappointment and frustration (from being limited in what I can do, from not having answers, etc.)
-trying to figure out how to tell people about my health condition without being a “sympathy seeker” or oversharing

This book has helped me toward a deeper awareness of the realities of people with invisible chronic illnesses/diseases. I realize that I am fortunate to not be as limited in my capacities as so many others are. I realize that I, too, have participated in the judgement or criticism of others’ decisions or performances – not knowing the underlying health issues they were facing. I am deeply humbled by the stories shared and grateful for the concrete advice the author gives for how to navigate conversations, school, work, and other areas of life. 

Mostly, I’m grateful for a spouse, family, friends, and colleagues who have shown compassion and care on this journey. I’m thankful for support groups of various kinds. I’m thankful for a flexible work environment. I’m thankful for doctors who listen.

I recommend this book for anyone with an invisible chronic illness or for those with recurring health issues, especially undiagnosed. I also recommend the book for anyone who loves and cares for someone who struggles with health issues – and encourage some follow up conversations to process together. I would caution that, while the book puts a good bit of responsibility on the person with the illness to set some action plans in place, these behavioral changes do not happen overnight. It takes time and practice to figure out what works for each person.

Covid has wreaked havoc on so many of our bodies, and some of us are struggling to find ways to navigate all of these changes. I share this to ask people to be patient, be kind, and be gentle – with yourself and others who are struggling with invisible illnesses.